The Day After

As usual the day after my Rebif injection I am an achy mess!  However, after popping Tramadol and sleeping most of the day I woke up feeling refreshed.  I decided I would take advantage of this rare burst of energy and cook a Sunday dinner on Thursday.  I'm talking about turkey wings with rice, collards, candied yams and corn bread!  Good eats, right?

Right.....but now I'm too exhausted to eat.  Gonna pour myself a glass of Riesling and enjoy my young man's surprised face when he gets home.  After eating at the campus cafe all year, his appreciation of a home cooked meal is pure joy.

I'm Back!

So many things have transpired since I last posted, but I'm baaaaaaack!  My recent MS flare landed me in the hospital, barely able to walk.  Took me a while to get back on my feet, but during that time I did a lot of reflecting.  I concluded I was not being true to me.  I have much to be grateful for.  God saves me and keeps bringing me back just as strong and it's not for me to live someone else's life.  I have to be true to me and engage in what brings me peace and happiness.

So with that said........I vow to not take any of it for granted, while MAKING IT ALL JOY!

Vitamin D

I met w/my neurologist's nurse practitioner this morning. Just a routine, how you doin', kind of appointment. I explained to her that I was still experiencing heavy legs, leg spasms, balance issues, the need to sleep for days, blurred vision and HELLACHES. Got new prescriptions but no new info, just keep doing what I'm doing.

I picked up a copy of Neurology Now in the waiting room and there was an article about MSers and Bone Loss. It talked about how we are usually deficient in Vitamin D. I had heard this before and started taking Vitamin D supplements last year.

I find it ironic that when I was younger I would seek out the sun. While my friends were trying to find shade, I was posting up in the sunniest spot I could find. Telling them that I was like a plant, I had to have sunlight!

Now the only times I don't have the achy, flu like symptoms after my Rebif injections is when I'm somewhere tropical and have been lounging in the sun.

You know they say, be careful what you speak into the universe.

The Power of Good Music

Sometimes I get so wrapped up in the drama of life that I forget what always soothes me......MUSIC! Tonight was one of those nights. Nothing in particular (or should I say unusual happened). Just feeling like I've had enough of the same. I pulled out my iPod and added some new tracks to my "Get Through" playlist. As usual it did the trick. In a much better place now. :-)

Coincidence? I think not!

Last week I learned a sister-friend has MS. Docs said she's had it for about seven years (previously misdiagnosed). My MS symptoms began seven years ago. She is the fourth person from our childhood neighborhood to be diagnosed. All of us experiencing our first symptoms around the same time. Is it coincidental or environmental?

Easter Monday

I hope everyone had a love and fun-filled Easter. I did my annual Easter baskets with the little ones in the family. I look forward to it just as much as they do. It's one of the ways I get to still be a kid.

Of course we ate good at Madear's as usual. But instead of sitting stuffed in front of the tv watching movies, we hooked up the Wii and the fun began!

We bowled, played tennis and boxed until about 1 am. The beauty of Wii is everyone in the family can play. My little cousin Jya put all of the adults to shame with her bowling skills and GrannyBaby was a force to be reckoned with on the target range.

By the time we called it a night, everyone was exhausted and trying to figure out how to work a Wii into the budget.

It was one of the best holidays we have spent together in years and we also got to work off some of the calories from the cake.

Love you fam!!

Solu-medrol

I've been waiting to hear from my neuro's office. Hoping they'll tell me I could just take a pill to stop the numbness and tingling. No such luck......the dreaded solu-medrol again! The plan is to start the drip on Friday and finish up on Sunday. That way, all of my craziness will take place in the privacy of my own home.

I haven't told Face about this yet. I'm sure he won't be happy to hear. He knows the drip means there will probably be some type of DIY home improvement project taking place. Oh well, the dining and living rooms do need to be repainted. ;-)